There are a number of resources and support groups that can help you and your family better understand and live with Fabry disease. You can also show your support for others living with the disease.
Learn more about Fabry disease with these brochures
A Visual Guide to Understanding Fabry
Learn about the genetics of Fabry disease, including what causes it, how it is passed from mothers and fathers, how it affects the body, and more.Download
Women and Fabry
Learn about some of the unique effects Fabry disease can have on a woman’s body and quality of life.Download
Pain and Fabry
This fact sheet outlines how and where people with Fabry might experience painDownload
Understanding and Managing Gastrointestinal Symptoms In Fabry
Gastrointestinal symptoms are very common in people living with Fabry diseaseDownload
Hearing Loss and Fabry Disease
Understand how hearing impairment may occur in Fabry disease, ways to identify it, and potential treatment and methods to manage itDownload
Testing for Fabry Disease
Learn of the importance and benefits of testing for Fabry disease along with sources and locations to get tested.Download
Fatigue and Fabry Disease
Learn about the effects of fatigue in Fabry disease and potentials ways to manage it.Download
Get support, learn more, and connect to others living with Fabry
There are many Fabry disease-related support and education groups. They can help you learn more about Fabry disease, connect you to others with the disease, and keep you updated about the latest developments in Fabry disease. Click on the links below to visit some of these sites.
Fabry Support & Information Group:
This organization is committed to raising awareness about Fabry disease and its symptoms. It provides support and encouragement to patients and their families.
The National Fabry Disease Foundation:
Learn about Fabry disease-related programs and projects, take advantage of the various resources available through the site, and get the latest information about living with and managing Fabry disease.
Fabry Facebook groups and pages:
Fabry Information and Genetic and Rare Disease Groups
National Institutes of Health (NIH)
Get the latest information about treatment, clinical trials, publications, and Fabry-related organizations and support groups.
Learn about the many ways genetics plays a part of your life and learn more about Fabry disease.
Show your support
Show your support for others living with Fabry disease. Select as many images as you like and share them through your social media. Come back often to see new images.