Get support, learn more, and connect to others living with Fabry
There are many Fabry disease-related support and education groups. They can help you learn more about Fabry disease, connect you to others with the disease, and keep you updated about the latest developments in Fabry disease. Click on the links below to visit some of these sites.
Fabry Support & Information Group:
This organization is committed to raising awareness about Fabry disease and its symptoms. It provides support and encouragement to patients and their families.
The National Fabry Disease Foundation:
Learn about Fabry disease-related programs and projects, take advantage of the various resources available through the site, and get the latest information about living with and managing Fabry disease.
Fabry International Network (FIN):
The FIN website serves as an independent forum for various Fabry associations. It features information and news about Fabry disease and current and future treatments.
Fabry Facebook groups and pages:
National Institutes of Health (NIH)
Get the latest information about treatment, clinical trials, publications, and Fabry-related organizations and support groups.
Genetic & rare disease groups
Learn about the many ways genetics plays a part of your life and learn more about Fabry disease.
National Organization for Rare Disorders (NORD)
This website provides information and resources for patients and their families, help with medication access, and opportunities to connect with others and to get involved.