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It took us over two years to finally get a diagnosis. He is being treated now and has 9 specialists who now monitor him. We know we have a long road ahead of us, but we are ready to learn as much as we can and help raise awareness for this rare disease in any way possible.

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Your story can be a source of inspiration and education for other members of the FabryConnect community—and another person’s story can be helpful for you. Use the form below to help guide you. We may not be able to post every story that’s submitted, but we’ll do our best to post those that can be the most helpful for our community

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