Share your Fabry story

While every patient’s Fabry experience may be unique, patients share the common ground of living with and managing a challenging disease. Your story can be a source of inspiration and education for other members of the FabryConnect community—and another person’s story can be helpful for you. Use the form below to help guide you. We won’t be able to post every story that’s submitted, but we’ll do our best to post those that can be the most helpful for our community.

Suggested topics include:

  • How I talk with others about Fabry
  • My path to diagnosis
  • My family life
  • The best advice I received about living with Fabry