Fabry Disease Videos from Experts
Fabry Disease Genetics
Pain and Fabry Disease Dawn A. Laney, MS, CGC, CCRC, a genetic counselor and assistant professor at Emory University, explains how a certain genetic change (variant) in Fabry disease occurs, what it means for you and your family, and how to get tested.
Pain and Fabry Disease
Dr. Darius Adams, MD, a clinical geneticist at Goryeb Childern's Hospital, addresses the different types of Fabry related pain. Additionally, he categorizes the type of pain, lists pain triggers, and discusses how to talk with your healthcare provider.
Fatigue and Fabry Disease
Dr. Darius Adams, MD, a clinical geneticist at Goryeb Childern's Hospital, discusses fatigue in Fabry disease including recommendations on how to discuss it with your healthcare providers and necessary lifestyle changes to decrease fatigue.
Our goal is to answer the questions that matter most to the Fabry community. We’ll keep adding new videos based on the topics that interest you, so remember to check back from time to time.